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Sunday, December 8, 2013

San Antonio

The fall flew by fast!  In October, we made the difficult decision to pull Lochlan out of his church preschool classroom so that he can attend his ABA program 12-14 hours each week.  I'm really sad because we really love this church preschool but I know that Lochlan wasn't really able to participate the way that other children in his class could.  Left to his own devices, he was opening and shutting cabinet doors in the classroom and refused to sit for circle time.  There were also reports of him pinching other students and trying to bite his teachers.  Clearly, he was getting frustrated and was not able to communicate as he should.  

None of that is surprising, given the results of his recent speech evaluation.  His speech eval indicates that his receptive language skills are equivalent to about a 15-18 month old and his expressive language skills are somewhat equivalent to a 9-12 month old. 

Lochlan is two and a half years old.

I could go in depth and tell you how this makes me feel but I will save that for another post.  For now, suffice to say, we are hoping ABA helps him.  Since starting ABA over the summer, we have seen at least some increase in his ability to concentrate and focus and some increase in his imitation skills.  This is key because all of those are necessary prerequisites to natural, social learning.

And life marches on.

In November, we took a family trip down to San Antonio.  My parents joined us, as well as my brother from New York.  We drove down and stayed in a rental house that was spacious enough for Lochlan to stretch his legs.

The house had an awesome backyard with a heated pool.  Sadly, we were unable to enjoy those features because it was an absurdly cold stretch of days in Texas, with temperatures in the 30s and 40s and so.so.windy!!

Nevertheless, we did what all first time visitors to San Antonio must do and visited the Alamo.  With our noses running and our hair whipping about in the relentless wind.  We bundled up Lochlan as much as we could but he could still barely tolerate it.




While in San Antonio, we also visited the San Antonio Children's Museum.  I am a serious children's museum junkie.  They are such fun places and it's great to have something to do on a vacation that is specifically geared towards Lochlan.  I like taking him to children's museums because even if he can't participate in all the activities for kids his age, we are always able to find at least something in them that he is able to enjoy and that is at his speed.

The San Antonio Children's Museum was a decent place to spend an afternoon.  We stopped at the tots area for children under 3.  Lochlan played with some cool light pegs and was interested in some bubbles.

I also checked out his height against David Robinson.  How is anyone that tall??

There was a cute farm area where Lochlan got friendly with this plastic cow.

But the real highlight was the kid-size HEB grocery store.  There were two things that made me excited about Lochlan's activity in this area:

1.  He wanted one of the little grocery carts and actually pushed it around a little bit by himself.  I have never seen him push a cart before so this was huge to me!!


2.  He actually took some cans off the shelf on his own and when we said, "Put it in!" he did put them in the cart by himself.  He even dropped a can by accident, noticed that he dropped it, and then stooped to pick it up and put it in the cart with the others.  Earlier this year, he would not have had enough focus to complete that simple act.

He only played with the cart and cans for 3 minutes at most, but to see him engage in any kind of age-appropriate, "normal" play was tremendously exciting for me and Sachin.  To parents with typical children, what he did doesn't sound like anything to write home about, but for us, it really was!  We are keenly aware of every small accomplishment he makes and we let that satisfaction resonate deeply within us. 
There are so many uncertainties facing us but I will gladly stop to revel in these ever so tiny marks of progress.





Saturday, October 12, 2013

The A Word

Did you know that autism affects 1 in 88 children? And, when you break it down by gender, 1 in 54 boys?  

We officially became part of that stat this week.

We had another appointment at the Fort Worth Child Study Center where we received the results of Lochlan's autism evaluation that was done in August.  The psychologist's report indicated that Lochlan's assessment results were consistent with moderate to severe autism, though our developmental pediatrician at Child Study said she feels he is more on the moderate end of that range.

But there you have it.  Even though we had kind of known this already, we now have an official diagnosis.  And it was still a very sobering thing to hear.

Does it change anything? Not really, I guess.  We are still continuing with his ABA program and are considering taking him out of preschool in order to increase his ABA time.  That's a tough call but it seems that he is not really participating well in preschool and is perhaps not getting as much benefit of being in a "normal" setting as we had hoped.  I don't know yet what we will do but I just want to keep seeing Lochlan progress.



Saturday, October 5, 2013

Cape Cod

In July, we took a trip to Cape Cod.  I've already blogged about the first part of that trip, which was a quick stop in Boston and a visit to Boston's Children's Museum.  After leaving the city, we made the drive out to Cape Cod.  Neither Sachin nor I had ever been there before, but we had read that it was laid back and family-oriented, which is just the kind of vacation we were looking for.  We also already knew from a previous trip to Florida that Lochlan loves the beach.  Part of our life with Lochlan is trying to follow his lead, so his passion for the beach made this a good destination choice for us.

**If you click on any photo, it will open up a clearer image.  At least it does on my phone.

Our rental home for the week was in West Harwich.  A couple of years ago, we started doing rentals for vacations and I don't know how we can ever go back to hotels.  I love the space that rental homes offer.  This one was super cute. 

 I fell in love with coastal decor while in Cape Cod.



I had been nervous to see on Google Maps that our rental house was a 2 min drive from two different cemeteries, but it turns out that it wasn't a big deal because, as we came to find out, Cape Cod is FULL of cemeteries and you are hardly ever more than a few minutes drive from one!

I should have taken notes on our trip to blog it accurately.  I'll try to reconstruct the trip as best I can.

On our first day, we went to the ZooQuarium, which, shockingly, is a combination of a zoo and an aquarium.  It was pretty hot and humid, so none of us really enjoyed it all that much.  The best part was the restaurant next door, Captain Parker's Pub.  It had some amazing clam chowder. 




Then we went to a beach.  I confess, I have my beaches jumbled in my head but I am pretty sure the one we went to that day was Corporation Beach.  We found that by hitting beaches later in the day, we avoided having to pay heavy parking fees.  
Lochlan wasn't sure about the water at first, but once he got used to it, we couldn't get him OUT of the water.  He kept taking our hands and pulling us back toward the ocean.  








 The next day, we drove up the Atlantic coast and explored a little bit of the Cape Cod National Seashore.  We stopped at Highland Light, at which point Lochlan fell asleep.  




Next, we went to Skaket Beach.  We had heard that it had shallow, warm water and that it was a great beach for young children.  It lived up to its reputation!  We were there during low tide and you could walk out pretty far.  It was also an amazing place to watch the sunset!!
The downside to Skaket Beach was that come sunset, we were eaten alive by no-see-ums or midges or sand fleas or whatever you want to call them.  Mosquitoes have always loved me but these were not ordinary mosquitoes!  Sachin and I were both covered in welts all over our bodies the next day.  I think I counted 25 on my arms alone!  They were agonizingly painful and itchy and lasted for a couple of weeks.  Thankfully, they spared Lochlan and devoured us instead. 
Here are some more images from Skaket Beach.


 Another day, we made a quick stop at the Cape Cod Potato Chip Factory and then headed to Mashpee to visit the Cape Cod Children's Museum.  Due to traffic, we got to the museum about 45 minutes before they closed, which was a bummer, because we would have loved to stay longer.  This museum was just awesome!  For a small simple place, it was so well thought out.  Everywhere I turned, I discovered more fun activities for kids (and some for adults too!)  You could easily spend hours there.  Except for the fact that there was no A/C on.  We were sweating buckets.  But it was still a great place to visit!
After we left the museum, we went to see Nobska Point Lighthouse in Woods Hole.  (Lochlan fell asleep again.  He seemed to do a good job of avoiding lighthouses!)
We spent the evening in Falmouth where we strolled around Main Street and shopped a bit, and then had a delicious dinner at an Indian restaurant.
Another day, we went to the Wellfleet Bay Wildlife Sanctuary.  It's basically a nice nature preserve with trails and educational exhibits.  We went there in the morning but the humidity got the better of us quickly so we walked one trail and then escaped to our car where the A/C was a sweet relief.
Later, we headed to Mayflower Beach, which was crowded but fun.  The water was shallow, warm, and crystal clear.  Lochlan enjoyed more beach time.  I tried to get him to use the shovels we brought, but he wasn't interested.  He just liked to wade in the water and sit down, poking his fingers into the wet sand as the waves came in and out.



Later that evening, we went into Chatham and took a walk on the beach there before dinner.

On our last day in Cape Cod, we decided to take a break from the beach and go to a pond instead.  Cape Cod is full of ponds and I heard they are popular spots to hit in the summertime.  I think the one we went to was Long Pond, but I could be making that up.  It was just lovely there, very idyllic.


Cape Cod is a great family vacation destination.  It definitely involved a lot of daily planning and decision-making, so that aspect made it more complicated than, say, going to a resort.  But it felt very authentic and the place definitely has its own kind of charm.  I hope that we head back there one day in the future!